Tag: Fibromyalgia

Today, May 12th, Is Fibromyalgia Awareness Day

Every May 12th is Fibromyalgia Awareness Day. It is celebrated by raising awareness of the disease in the hopes of giving those who may be suffering with it some hope as well as provide opportunities for anyone to express support for those suffering with the disease.

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So what exactly is Fibromyalgia? It sounds kinda funky, maybe even pretend? Isn’t this some sort of cop-out for lazy people or people with hypochondria?

The answer to the above is a resounding NO!

Fibromyalgia is a largely misunderstood disease that afflicts anywhere from 2-6% of our population (depending on source), primarily women but there have been concerns that the gender disparity may be that men tend to under report pain and fatigue.

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Chronic Tonic: Fun With Fibromyalgia!

Originally posted at Voices on the Square

Yes! It’s Tonic Time Again!

This week I’m dealing with one of those regally crappy oh so much fun aspects of Fibromyalgia, lucky girl that I am!

I am the classic princess and the pea. I can feel every single bump in my mattress, every last wrinkle in the sheets, any bunching of my pajamas – everything. Normally, the biggest problem I have with this is a little soft bruising wherever the “pea” lumpy was, or that my hip joint starts hurting and i have to turn over: wash  rinse repeat.

Chronic Tonic: Creeeeeeck! Snaaap! Wait – Is That My F-n Joint?

Originally posted at Voices on the Square

As anyone with chronic health problems knows, issues can and will rear their unruly heads from time to time. Another thing those of us blessed with crapititus in the health department know, is that folks with chronic conditions are more susceptible to other health issues, as if one or two is just not enough. Bwahahahaha!

And so it is with me, down here on the bayou with my fibromyalgia and osteoarthritis. The one nice thing I can say about the bayou in the summer is that the damp heat is easy on the joints…  ðŸ˜€

Chronic Tonic- With A Flare~

originally published at VOTS

I guess the fibro flare was inevitable, what with the uptick in stress and all. The tiredness and muscle pain, well, I can deal with that. I’m only mildly annoyed, really. You want to know what’s killing me? The fog. The losing my train of thought, my next word, the standing there with my mouth hanging open…I hate that!

And it is stupid things too. I’ll be standing in kitchen, wanting more coffee, but being fogged, I will have left my cup by my computer. So I say, “Collin, could you bring me my….” that thing, that thing right there, I’m looking at it, I’m pointing at it, the kid is starting to look at me strangely now….”cup, that cup.” Damn it.

My dad talks to my while I’m typing. Well, to be honest, my dad talks to me, no matter what I’m doing. On the phone, typing, talking, reading, and normally, I don’t like to say anything to him because if I do he gives me that exaggerated ‘sorry” that tells me he’s anything but, and I ought to feel like shit for daring to speak. He just thought I’d like to know that pot roast was on sale. While I’m busy telling him that he buys it I just cook it– I look down to notice I just typed “pot roast”– in an e-mail to Dan’s teacher. Yeah…son of a bitch. Backspace, backspace, backspace…..ugh.

Then last night I pissed myself off so badly…I can scarcely express it. I’ve always been a bit of a channel surfer during commercial breaks. I was watching a true crime thing on Discovery ID and it went to commercial, so I surfed. Do you know I never came back? Nope. Just clean forgot I was watching something. It wasn’t like I found something more fascinating to watch on another channel or something like that, no. Oh, no, no, no! I was still mindlessly switching around when a glance at the clock showed me 59 minutes and I made an audible gasp. Now how the hell did that case turn out? Gah!

Stuff like this…it really bothers me.

Music & Memory & the ‘Illusory Self’

Cross posted at DailyKos, ePluribus Media and Tikkun Daily.

Abstract: Current research in the cognitive sciences and neurology abounds in astounding theories on the locus of long-term memory; the ability of the brain to repurpose sections to recreate neural pathways totally destroyed by strokes, head injuries, or severe mental disabilities; and the intricate interplay of powerful emotions and complex neural coding in ‘reliving’ past traumas.

Drawing upon findings on the use of mirror boxes to threat phantom limb pain, on the role of our senses in unconsciously triggering highly emotive memories capable of transporting our consciousness beyond time/place constrictions, and the always miraculous studies of neurologist Oliver Sachs, herein is a different take on treatment for conditions such as chronic pain, strokes, and mental and affective disabilities.(Note: if possible, go to diary end to play music as you read)

There is this one story in Oliver Sach’s Musicophilia: Tales of Music and the Brain which remains readily retrievable in my memory. A story so utterly mind-boggling, so counter-intuitive, so, as it were, against the grain, that it has  hunkered down in my hippocampus, leaving an indelible imprint in the very cellular structure of my brain.

The Chapter “Pitch Imperfect: Cochlear Amusia” begins with a quote from Shakespeare’s Troilus & Cressida: “Untune that string/And hark, what discord follows!”



Here’s a paraphrase.

An aging renowned composer and conductor visits Sachs to discuss the ever-increasing difficulties in his music pursuant to his increasing hearing loss, accompanied by the loss of absolute pitch. Sachs, along with auditory specialists, concur that the problem is irreversible, due to the natural die off of some of the 4500-odd hair cells within the ear’s Organ of Corti. The musician learns to compensate, composing and directing in lower registers (even when these variations grow from 1/4 to over 1 full octave in discrepancies) and soon discovers he can make contextual ‘auditory’ corrections when working in full orchestra as opposed to with solo cellos, violas, or trombones. He begins to entertain the notion that his problem may be more in his brain. Some time goes by before Sachs receives a letter from the composer, informing him that he has regained his sense of absolute pitch, that once again he can accurately compose, hear and direct music. The change occurred after he received a commission which involved his total immersion in the composition of complex orchestral pieces. Sachs concludes that, despite the non-functionality of significant parts of the musician’s auditory processing facilities, becoming totally immersed in music for an extended time, reactivated his cellular musical memory, which resides inside the brain.

For some people, music can actually change the structure of the brain. Researchers have found that an area of the brain called the corpus callosum is enlarged in professional musicians.

Another part of the brain is enlarged in musicians with absolute pitch. A person with absolute pitch can identify or recreate a musical note without the help of a musical instrument.Link